Progressive Release of Informational Materials for People Living with Dementia and Their Informal Carers

Turner, Jonathan and O'Neill, Siobhan and Berry, Damon and Doyle, Julie and Kambampati, Harish and Moran, Orla and Smith, Suzanne and Wilson, Michael and Dympna, O'Sullivan (2025) Progressive Release of Informational Materials for People Living with Dementia and Their Informal Carers. In: Global Healthcare Transformation in the Era of Artificial Intelligence and Informatics. IOS Press.

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Abstract

We describe a process for selecting informational material for people living with dementia that is most appropriate for their stage of dementia. This material provides information on the disease, on ways of living with the disease, and on activities that may delay the progression of the disease, with a view to maintaining an individual’s independent living at home. Informational material is suggested according to both an individual’s overall clinical disease progression and progression along seven cognitive domain axes that contribute to the overall progression, for example ‘working memory’ performance or ‘attention’, with scores for these axes being derived from clinical judgement, from fixed and wearable sensors, or from performance when interacting with devices. Material is rated according to relevance to overall disease progression and relevance to each of the seven axes. For example, the Alzheimer Society of Ireland ‘Living Day To Day’ document is most relevant to those diagnosed with early dementia onwards, but may also have useful information for those without a dementia diagnosis but are experiencing problems with their working memory or attention.

Item Type:	Book Section
Subjects:	Science
Research Centres:	Netwell/CASALA
Depositing User:	Patricia McAleer
Date Deposited:	13 Aug 2026 23:31
Last Modified:	13 Aug 2026 23:31
License:	Creative Commons: Attribution-Noncommercial-Share Alike 4.0
URI:	https://eprints.dkit.ie/id/eprint/1073

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